Endometriosis (Endo) condition is where tissuse/cells similar to the lining of the womb grow in other places and this is not limited to a specific part of the body.
Areas include:
Vagina, The ovaries
Cervix
Spleen
Uteru
Fallopian tubes
Bladder
Thoracic
Bowel
Uterosacra ligaments
Kidneys
Rectovanginal septum
Appendix
Small and large intestine
Liver and more.
It can take 7.5 years to diagnose and 1 in 10 women have it. This is the stats that we have in the UK, but we understand that Endometriosis can affect transgender and non-binary people, and this number may be higher.
It affects all race and ethnicities, and there are stats that show how different races are treated by the medical system. 10% of women world wide have Endo- thats 176 million worldwide. It can your love life and the ability to deliver at work and to stick to social commitments. The cause of this chronic invisible and debilitating condition is unknown and there is no cure.
It can also cause infertility, the actual percentage and say 30-50% of women with Endo are infertile.
The most common indicators for Endometriosis is painful sex which can involve bleeding during and after intercourse. Painful periods where the pain is more than the 'normal' cramping pain when menstruating.
The complications Endo can cause is that the tissue can become irritated, develop scar tissue, adhesions, fibrous tissue plus pelvic tissues can make organs to stick to each other, and ovarian cysts. It's also the inflammatory repose from your body that the cells are there.
Speak to relatives as they say there may be genetic factors and there is data that says you are 7 times more likely to develop Endo. These are some symptoms that Endometriosis suffers have said they have experienced:
Abdomen pain
Bloating/Flares
Lower back
Excessivebleeding
Severe period pain
clotting
Pain passing stool
Pain during and after sex
Brain fog
Allergies
Low progesterone and high estrogen levels- estrogen dominance - a type of estrogen called estradiol which can cause inflammation
Fatigue
Headaches
Insomnia
Breast pain
Anxiety
Nausea
Mood swings
Shortness of breath/tight chest
Pain in your legs
Treatments now and for life can include:
Strong painkillers like morphine
Hormone medicines-HRT, chemical menopause, the pill
Laparoscopy surgery to remove the Endo tissue
Some may need a stoma bag
Hysterectomy
There are alternative like-pelvic floor, physiotherapy, mental health intervention, acupuncture, massage and more
Look into your nutrition. What tiggers flares, bloating, hormones imbalance, abdominal pains, constipation, fatigue, mood swings and more.
Remember you can suffer from more than one type of Endometriosis. Keep a journal of what you are experiencing, track periods, your pains, your emotions, medication you are taking, calls and appointments you have and even video record. Note down who you have spoke to and what you was told. Inform a loved one of your journey.
Helpful sites:
hhtps://www.bsge.org.uk/endometriosis-centres/
https://www.nice.org.uk/guidance/ng73